Empowering the Voice of Change

Introducing Advocacy Beyond Borders

Advocacy is a marathon, not a sprint.

There will be many winding roads along your journey before you make it to the finish line. There are people to meet and signposts to guide along the way but it’s not easy. As a rare disease community, we are often small in numbers and always short on time. Advocacy beyond Borders has been created to ensure no one is alone on their journey and to help to navigate the path to the change needed.

Join Our Global Community

Offering membership opportunities with dedicated resources, value-added information and tools for Patient Advocacy Groups and Industry Groups, to create stronger patient-centred global communities.

If you are seeking significant positive change in your rare disease community, Advocacy Beyond Borders can work with you to bring together all stakeholders to develop and deliver a strategic plan with solutions.

Work With Us

We work with patient groups and pharmaceutical industry organisations to develop and support local solutions with local communities, and all relevant experts and stakeholders. We utilise best practice resources, advocacy strategy and tactics to deliver models to support your efforts and aspirations.

  • Discovery Zoom Sessions

  • Survey Template Tools

  • Virtual Training Sessions

  • In-Person Guided Training and Support

  • Customised Training Videos

  • Premium Advocacy Plans

Advocacy Beyond Borders Key Message: Rare disease testing and treatment must be available, accessible and affordable
Advocacy Beyond Borders Key Message: Rare disease can be identifiable, treatable and preventable
Advocacy Beyond Borders Key Message: Timely access to testing and treatment for all rare diseases

Our strategic plan focuses on Connecting Patient Advocacy Groups to the rest of the world through the creation of global awareness initiatives…

We would love to meet you! Join us at our next events…

Proudly partnering with

Advocacy Beyond Borders proudly partnering with Novartis

Find out more information about partnering opportunities

Lisa Foster on the importance of working with Advocacy Beyond Borders